Esclerosis Tuberosa.

REPRESENTANTES DE ASOCIACIONES DE ESCLEROSIS TUBEROSA EN EL MUNDO:

AUSTRALIA
Website ATSS: http://www.netspace.net.au/~atss/index.htm
E-mail: atss@netspace.net.au
E-mail: atss@eagles.bbs.net.au (Terence Doyle)
Mrs Lynn McKinnon
22 Mason Street
Thirroul
New South Wales 2515
AUSTRALIA

CANADA
Tuberous Sclerosis Canada Sclerose Tubereuse (TSCST) (http://www.tscst.org)
Ray Marco, Secretary
P.O. Box 332
Dunmore, Alberta
CANADA
T0J 1A0
Phone (toll free): 1-800-347-0252
E-mail: rmarco@monarch.net

CZECH REPUBLIC
Dr Borek Petrak
Lumieru 24
152 00 Praha 5
CZECH REPUBLIC

DENMARK
http://www.tsdanmark.dk/
DFTS
Mrs. Pia Johansen
Mønstedvej 26
2670 Greve
DENMARK
Tlf : 4390 1366
Piagersdorf@mail.dk

DEUTSCHLAND
TSD Internet site or www.TSDeV.de
Tuberoese Sklerose Deutschland e.V. (TSD)
BUNDESVORSITZENDER
Helmut Hehn

Verbandsbüro:
Marion Rebmann
Zum Hollenstein 6
34513 Waldeck
Tel. 05634 / 99 39 30
Fax 05634 / 99 39 34
eMail: Rebmann@TSDeV.org

Lab Location:
Laboratory for Medical Genetics
Lochhamer Str. 29
82152 Martinsried
Germany
Tel.: +49-89-8955780
Fax:+49-89-89557878
www.medizinische-genetik.de
e-mail: mayer@medizinische-genetik.de
DEUTSCHLAND

EIRE
Mr. & Mrs N. Manning
20 Portmarnock Park
Portmarnock
Co Durblin 6
EIRE

ESPAÑA
Homepage: http://www.esclerosistuberosa.com
Send eMail: info@esclerosistuberosa.com
Alfredo Guerisoli
Tlfno: (34) 95 260 18 20
Calle Hortensia 5
Urbanizacion Cotomar 29730
Rincón De La Victoria
MALAGA ESPAÑA

Asociación Esclerosis Tuberosa de Madrid
Yolanda Palomo (Presidenta)
Camerena 119
28047 Madrid
Email: escletuber@wanadoo.es

FINLAND
Esko Siljamaki
Arotie/A/
SF 01820 Klaukkala
FINLAND

Eija Gaily, MD, PhD
The Hospital for Children and Adolescents
Lastenlinnantie 2
00250 Helsinki, Finland
Tel. +358-9-471 80420
Fax.+ 358-9-471 80688
E-mail. eija.gaily@hus.fi
FINLAND

FRANCE
Mme Marie-Christine de La Morlais
A.S.T.B. (http://orphanet.infobiogen.fr/associations/ASTB/ASTB.html)
13, route de Villemetrie
60300 Senlis
Fax / Téléphone : 03 44 60 97 66
Fax / Téléphone : 01 48 80 60 92
FRANCE

GREECE
Tuberous Sclerosis Greece: http://www.bio.auth.gr/~aris/tsa.html
or
http://users.nni.com/aris/tsa.htm | e-mail: tsa@ath.forthnet.gr
Send e-mail to TSA Greece: aris@serifos.bio.auth.gr
Mrs Marianna Lambrou
99-101 Timotheou Street
162 - 32 ATHENS
Tel :30-1-76 60 989
Fax :30-1 -72 62 481
GREECE

INDIA
Mr Kamlesh Shah
86 Mount Unique
62-A Pedder Road
BOMBAY 400 026
INDIA

ITALY
A.S.T. Associazione Sclerosi Tuberosa
(http://www.sclerosituberosa.it/)
AST - Associazione Sclerosi Tuberosa
Via Anagnina Nuova, 13 - c/o Villaggio "Eugenio Litta"
00046 GROTTAFERRATA (RM) Italy
Tel./Fax (+39) 06 9415001 - 335-8282000
E-mail info@sclerosituberosa.it

AINE
Sr Paolo Lotti
c/o Fratellanza Popolare
Via di Peretola, 68
50145 FIRENZE
ITALY

JAPAN
Akiko Yokohama
Secretary TS Tubasanokai c/o Toy Library
National Childrens Hospital
3-35-31 Taishido Setagaya-Ku
TOKYO 154
JAPAN

E-mail TS families group manager: sasaki-t@rtri.or.jp
Toshiaki Sasaki
2-25-11 Mitsuidai
Hachioji City 192
TOKYO
JAPAN

MALAYSIA
Kay Teoh
3 Lorong 16/3B
Petaling Jaya 46350
Selangor Darul Ehsan
MALAYSIA

MEXICO
Cesar & Betty Riera
Calle 37A # 370 x 28 y 30
Fracc. Montealban
Merida
Yuc
MEXICO C.P. 97000

NETHERLANDS
Mrs. Marlies van Zuilen
STSN-homepage: http://www.stsn.nl/index.htm
Send e-mail to STSN: info@stsn.nl
Karveel 45-74
8242 VB Lelystad
NEDERLAND
Tel.: ++31 (0)320 233248

NEW ZEALAND
www.eagles.com.au/~atss/nzts.htm
or
http://www.netspace.net.au/~atss/nzts.htm
Mr & Mrs Pat Coakley
New Zealand TS Support Group
36 Sailsbury Road
Birkdale
Auckland 1310
NEW ZEALAND
Tel/Fax: 64 9 483 5392
Pat.Coakley@lion-nathan.co.nz

NORWAY
http://www.tuberous-sclerosis.epilepsy.no
Norsk Forening for Tuberøs Sklerose
v/Torbjørn Hodne,
N-4532 Øyslebø
NORWAY
Telefon: 38 28 76 27, • Telefax: 38 28 76 76 • Mobil: 90 56 67 10
E-post: torb-ho@online.no

POLAND
Dr Sergiusz Jozwiak
Dept of Child Neurology
Centrum Zdrowia Dziecka
A1. Dzieci Polskich 20
04-736 Warszawa
POLAND

Polish TS Assn
Mr. Kazimierz Dyka
u1.Czachowskiego 23/9
27-600 Sandomierz
POLAND

LA REUNION
Bruno Maillot
ARAFASTB
13 Chemin A. Roussin-
La Bretagne
97490 SAINTE CLOTILDE
LA REUNION

ROMANIA
Dr.Simona Visan
Romania,
Bucuresti,
Str.Stefan cel Mare nr.60,
Bloc 41,
apt.7,
sector2
Tel/Fax:+40-1-2106862
visancos@mb.roknet.ro

RUSSIA
Svetlana Selina
President TSA Russia
Lazo str. 10/1-51,
Moscow 111398
(tel.: 7-095 -309-2452)

Marina Dorofeeva
Iccar@icom.ru

Institute of Pediatrics & Pediatric Surgery,
Department of Neurology & Epileptology,
Taldomskayastr.2 Moscow 127412,
Russia (tel.: 7-095-487-55-08),
E-mail: neurol@pediatr.mtu-net.ru.

SOUTH AFRICA
TS Association of South Africa
Mrs S. Olivier
PO BOX 2217
Primrose
Germiston
SOUTH AFRICA 1416

SWEDEN
SFTS
www.ts-sverige.com
Svenska föreningen för Tuberös skleros
co/Lena Wahlund
Strömgatan 2
667 34 Forshaga
Sweden
Tel/fax. 054-87 45 43
E-post: lena.wahlund@ebrevet.nu

Eva Nordin-Olson
SFTS
Ostnor 4438
792 95 MORA
SWEDEN

TURKEY
Prof. K Kutlu
Professor of Pathology
Trakya University Medical Faculty
Edirne
TURKEY

UNITED KINGDOM
Mr & Mrs TE Carter
TSA site: http://www.tuberous-sclerosis.org/
The TSI/TS Europe site http://ourworld.compuserve.com/homepages/Tom_Carter
Send e-mail to the secretary of TSA (Janet Medcalf): secretary@tuberous-sclerosis.org
Send e-mail to Anne Carter: appeals@tuberous-sclerosis.org
Tuberous Sclerosis Association
PO Box 9644
BROMSGROVE
B61 0FP
ENGLAND

USA
Dr Vicky Holets Whittemore
Tuberous Sclerosis Alliance: http://www.tsalliance.org/default.asp
Send e-mail to NTSA: vwhittemore@tsalliance.org
801 Roeder Road, Suite 750
Silver Spring, MD 20910
USA
Tel: 301-562-9890
Fax: 301-562-9870
Toll free: 800-225-6872

YUGOSLAVIA
Professor Dusan Vranjesevic
Clinic for Child Neurology & Psychiatry
Dr. Subotica St. 6a
BELGRADE
YUGOSLAVIA

Secretariat TSI:
Mrs. P. J. M. den Hollander
Prins Bernhardlaan 36
3722 AG Bilthoven
The Netherlands
Tel/Fax: +31 30 2281821
Send e-mail to TSI:

Bankers:
Rabobank, Bilthoven, Nederland, No 31-54-71-719.

For a new search for Health & Medicine you can use:
Yahoo (Health)
AltaVista (Health)
Niwi Biomedicine Bibliography database
Pediatric Database (PEDBASE from the University of Western Ontario in Canada)
TS and Genetic research (The Cardiff-Rotterdam Tuberous Sclerosis Mutation Database)

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